The 2019 Australasian Society for Intellectual Disability Conference was held from 6 – 8 November at the Hilton Adelaide. Below are the plenary and oral presentations that were presented at the conference. Click on the title to view the abstract. Where permission was received the presentation slides are also available linked to the PDF icon.

If you are a presenter and have yet to provide permission for your slides to be shared please email mail@conferencedesign.com.au. No slides will be shared unless permission is received.

Wednesday 6 November 2019
Session Title Presenters PDF File
Keynote Systemic advocacy and leadership by people with intellectual disability Jim Simpson & Shu Hua Chan
Keynote What stereotypes do people have of YOU? Dr Dean Holland – Take Better Photos
Concurrent Session 1
FAMILIES INCLUSIVE SERVICES AND COMMUNITIES SELF-ADVOCACY AND RELATIONSHIPS POST SCHOOL OPTIONS SOCIAL RELATIONSHIPS
Embracing the future: an evaluation of sexuality workshops for parents and carers of children and young people with intellectual disability and autism spectrum disorders
Erin Donnelly
What makes community activities accessible? The views of adults with intellectual disability
Dr Allyson Thomson
Having a say: Down Syndrome Advisory Network (DSAN)
Dr Ellen Skladzien
Improving school to work transition for young people with intellectual disability 
Amy Scott & Dr William Crisp
Twitter School!
Aine Healey
Adult siblings of people with disability: exploring the complex system of relationships that contribute to positive life span outcomes
Wendy Simpson
Finding ways to support local councils as agents for inclusion – what the “My Home My Community” project has discovered so far
Dr Phillippa Carnemolla, Jack Kelly, Catherine Donnelley & Aine Healey
Writing the script. The overt and hidden contradictions of supporters’ work in independent self-advocacy groups
Dr Sian Anderson
An evaluation of Community Bridging Service Inc.’s school2work Supports
Adele Demasi
Friendships & relationships for people with intellectual disability
The Inclusive Research Network
The experiences of ageing parent carers and the reasons behind their decision to continue to care for adult children with intellectual disability at home
Wendy Simpson
Enabling hospitals to be more inclusive and responsive to people with intellectual disabilities
Professor Christine Bigby
Mutual recognition in paid support relationships
Professor Karen Fisher & Professor Sally Robinson
The Micro Enterprise Project: building meaningful employment opportunities for people with disability
Jayne Barrett
Models for forming and supporting circles of support for people with intellectual disability
Dr Tal Araten-Bergman
Session Title Presenters PDF File
Keynote Critiquing approaches to community participation of people with intellectual disabilities Dr Stacy Clifford Simplican
Concurrent Session 2
BEING A SELF-ADVOCATE ORAL HEALTH INCLUSIVE AND PARTICIPATORY APPROACHES TO RESEARCH REPRESENTING PEOPLE WITH INTELLECTUAL DISABILITIES MENTAL HEALTH ISSUES
Workshop:
YOU too can be an advocate!

Jim Simpson & Shu Hua Chan
Workshop:
Oral health champions at genU – supporting the journey to a good life and taking control

Margery Pithouse & Bonnie Morrison
Increasing rigour in inclusive disability research methods: a systematic technique for accessible data analysis
Professor Sally Robinson & Professor Karen Fisher
Workshop:
More than just a poster boy – making sure people with intellectual disability have choice and control of how they are represented in communications

Ben Alexander & Rachel Spencer
Workshop:
Pathological demand avoidance: hype or hard graft?

Dr Jenny Curran, Michelle Miller & Kerry Rye
Using a novel approach to participatory network mapping to understand value creation in the lives of families with a primary school-aged child with intellectual disability
Jane Adams
Concurrent Session 3
PARTICIPATION HEALTH PEOPLE WITH COMPLEX NEEDS ADULTS CHILDREN AND FAMILIES
Workshop:
Feminist theories of freedom and intellectual disability: new ways forward for the concept of encounter
Dr Stacy Clifford Simplican
Recognising and responding to pain in adults with severe intellectual disability: the effectiveness of an intervention targeting support workers
Dr Stella Koritsas
What good life?- looking for belonging on the fringes
Benjamin Garcia-Lee
Where to next for adults with intellectual disability who have completed an inclusive university program
Charlotte Gobec
Mental health in children with a neurogenetic syndrome associated with intellectual disability
A/Professor Jenny Downs
N/A
People with intellectual disability and type 1 diabetes: toward strategies for supported independence
Dr Nathan Wilson
Evidenced based trial for complex psychosocial and forensic disability service delivery models in an NDIS framework – journey to a good life
Melinda Kubisa & Susan Goodall
Developing social skills with adults
Emily Churchill
FaceMatch.org.au: using computer vision to improve genomic diagnosis for people with a syndromic form of intellectual disability
Dr Tracy Dudding-Byth
Prevalence and incidence of physical health disorders in people with intellectual disability – a systematic review
Peiwen Liao
Building good lives, together – the development and implementation of a Model of Care in a NZ forensic intellectual disability context
Sandra Malcolm & Anne Mathieson
A process evaluation of an innovative inclusive performing arts project “Experience Collider” for teens with multiple support needs, within a quality of life framework
Nada Murphy
Development, validation and use of the Quality of Life Inventory-Disability (QI-Disability)
A/Professor Jenny Downs
Thursday 7 November
Session Title Presenters PDF File
Keynote We’re in this together: partnership working and Positive Behavioural Support Dr Nick Gore
Concurrent Session 4
SELF-ADVOCACY SERVICES RURAL AND REMOTE SUPPORTING PEOPLE WITH CHALLENGING BEHAVIOURS OR COMMUNICATION DIFFICULTIES PARTICIPATION
Workshop:
The long and winding road (big step)
Donna Best, Paul O’Dea, Belinda Drew, Morrie O’Connor & Michelle Moss
Workshop:
Taking control through digital transformation – effective systems
Natalie Berry & Declan Kelly
Making it real – student education in rural allied health disability services
Julie Cullenward
What do disability support organisations believe about Positive Behaviour Support (PBS)? Using policy belief systems to identify emerging alliances in the NDIS
Brent Hayward
Local Inclusive Fitness for Everyone (LIFE): results from a novel pilot project
Dr Carole Broxham & Dr Eli Ristevski
CDS outreach: reflections on establishing therapy facilitator services under the NDIS in western NSW
Sarah Wagstaff
The accessibility and usefulness of Positive Behaviour Support plans for non-specialised support people
Chloe Jarvis
Inclusive access to South Australian sporting clubs for individuals with intellectual and physical disabilities
Claire Robertson
Concurrent Session 5
COMPLEX SUPPORT INCLUSIVE RESEARCH METHODS RURAL AND REMOTE SUPPORT FOR DECISION MAKING QUALITY AND SAFE SERVICES
Restrictive practices – illuminating communities
Susan Connell
People with intellectual disabilities as researchers: establishing an inclusive research team
Felicity Crowther
Telepractice: a real choice for quality therapy services in rural areas
Dr Kim Bulkeley
Article 12 and the NSW guardianship framework: a case study highlighting barriers for people with intellectual disability regarding legal capacity and autonomy of decision-making
Jenna Macnab
What is good service quality for people with intellectual disability? Frontline day service staff’s perspectives on what it is and how it should be measured
Jade McEwen
Understanding the impact of the roadmap for achieving dignity without restraint for people with disabilities
Dr Raelene West
Inclusive research and diverse teams – who takes control and when?!
Dr Phillippa Carnemolla, Jack Kelly, Catherine Donnelley & Aine Healy
Barriers and impediments to providing end-of-life care in rural Australia
A/Professor Stuart Wark
Strategies for supporting people with intellectual disability to have choice and control over their lives?
Dr William Crisp
Building safe and respectful cultures in disability services: results of a pilot project
Professor Sally Robinson & Marianna Codognotto
Background evidence for the statement of ASID’s position on intellectual disability and complex support needs
Professor Leanne Dowse
Our recipe for inclusive research
Rachel High, Hannah Beinke, Mary Whitford, Genelle Markham & Corey Hooper
Living a good life for Aboriginal people with intellectual/ developmental disability from central Australia
A/Professor Angela Dew
Developing an evidence-based practice framework to guide support for decision making
Professor Christine Bigby
Sexual abuse of people with an intellectual disability – a perpetrator case study
Gail Ritchie
Session Title Presenters PDF File
Keynote Helping damaged people manage their chaotic emotions Dr Jennifer Clegg
Concurrent Session 6
PBS RESPECTFUL SERVICES NDIS SELF-ADVOCACY AND RIGHTS INCLUSION IN UNIVERSITIES
Workshop:
Emotional wellbeing and PBS for caregivers and people with disabilities who display behaviours that challenge
Dr Nick Gore
Workshop:
Making services safer and more respectful
Peta Ferguson, Professor Sally Robinson & Marianna Codognotto
Panel Discussion:
NDIS – What could possibly go wrong?
Panel Members:
Morrie O’Connor, Jim Simpson & Delphine Stagg
Workshop:
My life. My rights.
How Australia is doing at protecting our human rights and what the UN have to say 
Rachel Spencer, Judy Huett & Sonia Hume
Round Table:
Inclusion of people with intellectual disability at university in Australia

Dr Fiona Rillotta & Professor Patricia O’Brien
N/A
Concurrent Session 7
INCLUSION VIOLENCE AND ABUSE BEREAVEMENT PROVIDING INDIVIDUAL SUPPORT ADULTS AND SERVICES
Workshop:
What inclusion means to me
Sarah Byrne, Rebeka Touzeau, Chris Bergin & Ben Alexander
Forum:
Royal Commission on Abuse,Violence Neglect, and Exploitation of People with Disabilities
Workshop:
The Adult Attachment Picture Projective System: what it tells us about bereavement and why that matters
Dr Jennifer Clegg
Inclusive practice for decision making support
Justine O’Neill & Jack Kelly
Living a full and meaningful life with a physical & intellectual disability
Dayna Atkinson, Valeska Catalan & Sarah Black
Evaluation of decision-making support training for disability support workers
Dr Stella Koritsas
Experiences of National Disability Insurance Scheme planning from the perspective of adults with intellectual disability
Professor Angus Buchanan
N/A
The international perspective on Easy English and Easy Read: the journey forward
Cathy Basterfield
Service provider perspectives on supporting people with intellectual and developmental disability from Iraqi and Syrian refugee backgrounds
A/Professor Angela Dew
Friday 8 November
Session Title Presenters PDF File
Keynote Indigenous perspectives on disability and inclusion, and implications of these for supporting people with intellectual disabilities Scott Avery
Keynote Self-advocacy, peer networks and accessible information provision: how they have shaped our lives Ian Cummins, Tiffany Littler, Rebeka Touzea, Gavin Burner, Chris Bergin, Sarah Byrne & Elizabeth Crawford
Concurrent Session 8
WORKING INCLUSIVELY SELF-ADVOCACY APPROACHES TO INCLUSION TECHNOLOGY AND INTERNET CULTURE SELF-DETERMINATION
Workshop:
Inclusive research methods and practices involving people with intellectual disability
Scott Avery & A/Professor Angela Dew
Workshop:
Speaking up for yourself – the first steps to being a self-advocate
Our Voice SA members:
Elizabeth Crawford & Gavin Burner 
with Karen Rogers & Alison Vivian
Belonging to the Disability Services Advisory Council
Brad Mitchell & Emily Reaper
Caregivers’ views of the risks and benefits of Internet use by people with intellectual disability
Sarah Glencross
From criminalisation to individual choice: policy responses to changing constructions of intellectual disability in Western Australia
Wendy Simpson
An artist’s interpretation of the National Standards for Disability Services
The Inclusive Research Network
The use of virtual reality for capacity building through sensory experiences
Gerald Farrugia
Adventures in becoming a ‘legal’ adult with severe intellectual disabilities: personal and research perspectives
Michelle King
Taking control through writing and making art
Lisa Scott & Chloe Watfern
There and back again – Our South Australian Journey.  The use of skilled communication partners in the criminal justice space
Jennifer Jacobs & Cheryll Rosales
Concurrent Session 9
REFLECTIONS ON THE CONFERENCE PEOPLE WITH COMPLEX NEEDS FAMILY AND LEADERSHIP
Workshop:
Wrap up session: What can we do with all the research!
Aine Healey, Sonia Hume & Gavin Burner
Round Table:
The right to effective treatment for individuals with complex needs
Jennifer Colechin & Chelsea Troutman
Building Family Leadership – Culture and Process – a Provider’s View
Prue Gorman
Evaluating Self-directed Support – Outcomes of a Family Leadership Model
A/Professor Caroline Ellison
My experience of self-directing my own support
Michael Mooney

ABOUT ASID

The Australasian Society for Intellectual Disability (ASID) is a not-for-profit organisation that brings together research, policy and practice to improve the lives and services for people with a disability.

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