2019 Proceedings

The 2019 Australasian Society for Intellectual Disability Conference was held from 6 – 8 November at the Hilton Adelaide. Below are the plenary and oral presentations that were presented at the conference. Click on the title to view the abstract. Where permission was received the presentation slides are also available linked to the PDF icon.

If you are a presenter and have yet to provide permission for your slides to be shared please email mail@conferencedesign.com.au. No slides will be shared unless permission is received.

Wednesday 6 November 2019
Session	Title	Presenters	PDF File
Keynote	Systemic advocacy and leadership by people with intellectual disability	Jim Simpson & Shu Hua Chan
Keynote	What stereotypes do people have of YOU?	Dr Dean Holland – Take Better Photos

Concurrent Session 1
FAMILIES	INCLUSIVE SERVICES AND COMMUNITIES	SELF-ADVOCACY AND RELATIONSHIPS	POST SCHOOL OPTIONS	SOCIAL RELATIONSHIPS
Embracing the future: an evaluation of sexuality workshops for parents and carers of children and young people with intellectual disability and autism spectrum disorders Erin Donnelly	What makes community activities accessible? The views of adults with intellectual disability Dr Allyson Thomson	Having a say: Down Syndrome Advisory Network (DSAN) Dr Ellen Skladzien	Improving school to work transition for young people with intellectual disability  Amy Scott & Dr William Crisp	Twitter School! Aine Healey
Adult siblings of people with disability: exploring the complex system of relationships that contribute to positive life span outcomes Wendy Simpson	Finding ways to support local councils as agents for inclusion – what the “My Home My Community” project has discovered so far Dr Phillippa Carnemolla, Jack Kelly, Catherine Donnelley & Aine Healey	Writing the script. The overt and hidden contradictions of supporters’ work in independent self-advocacy groups Dr Sian Anderson	An evaluation of Community Bridging Service Inc.’s school2work Supports Adele Demasi	Friendships & relationships for people with intellectual disability The Inclusive Research Network
The experiences of ageing parent carers and the reasons behind their decision to continue to care for adult children with intellectual disability at home Wendy Simpson	Enabling hospitals to be more inclusive and responsive to people with intellectual disabilities Professor Christine Bigby	Mutual recognition in paid support relationships Professor Karen Fisher & Professor Sally Robinson	The Micro Enterprise Project: building meaningful employment opportunities for people with disability Jayne Barrett	Models for forming and supporting circles of support for people with intellectual disability Dr Tal Araten-Bergman

Session	Title	Presenters	PDF File
Keynote	Critiquing approaches to community participation of people with intellectual disabilities	Dr Stacy Clifford Simplican

Concurrent Session 2
BEING A SELF-ADVOCATE	ORAL HEALTH	INCLUSIVE AND PARTICIPATORY APPROACHES TO RESEARCH	REPRESENTING PEOPLE WITH INTELLECTUAL DISABILITIES	MENTAL HEALTH ISSUES
Workshop: YOU too can be an advocate! Jim Simpson & Shu Hua Chan	Workshop: Oral health champions at genU – supporting the journey to a good life and taking control Margery Pithouse & Bonnie Morrison	Increasing rigour in inclusive disability research methods: a systematic technique for accessible data analysis Professor Sally Robinson & Professor Karen Fisher	Workshop: More than just a poster boy – making sure people with intellectual disability have choice and control of how they are represented in communications Ben Alexander & Rachel Spencer	Workshop: Pathological demand avoidance: hype or hard graft? Dr Jenny Curran, Michelle Miller & Kerry Rye
		Using a novel approach to participatory network mapping to understand value creation in the lives of families with a primary school-aged child with intellectual disability Jane Adams

Concurrent Session 3
PARTICIPATION	HEALTH	PEOPLE WITH COMPLEX NEEDS	ADULTS	CHILDREN AND FAMILIES
Workshop: Feminist theories of freedom and intellectual disability: new ways forward for the concept of encounter Dr Stacy Clifford Simplican	Recognising and responding to pain in adults with severe intellectual disability: the effectiveness of an intervention targeting support workers Dr Stella Koritsas	What good life?- looking for belonging on the fringes Benjamin Garcia-Lee	Where to next for adults with intellectual disability who have completed an inclusive university program Charlotte Gobec	Mental health in children with a neurogenetic syndrome associated with intellectual disability A/Professor Jenny Downs
	N/A
	People with intellectual disability and type 1 diabetes: toward strategies for supported independence Dr Nathan Wilson	Evidenced based trial for complex psychosocial and forensic disability service delivery models in an NDIS framework – journey to a good life Melinda Kubisa & Susan Goodall	Developing social skills with adults Emily Churchill	FaceMatch.org.au: using computer vision to improve genomic diagnosis for people with a syndromic form of intellectual disability Dr Tracy Dudding-Byth
	Prevalence and incidence of physical health disorders in people with intellectual disability – a systematic review Peiwen Liao	Building good lives, together – the development and implementation of a Model of Care in a NZ forensic intellectual disability context Sandra Malcolm & Anne Mathieson	A process evaluation of an innovative inclusive performing arts project “Experience Collider” for teens with multiple support needs, within a quality of life framework Nada Murphy	Development, validation and use of the Quality of Life Inventory-Disability (QI-Disability) A/Professor Jenny Downs

Thursday 7 November
Session	Title	Presenters	PDF File
Keynote	We’re in this together: partnership working and Positive Behavioural Support	Dr Nick Gore

Concurrent Session 4
SELF-ADVOCACY	SERVICES	RURAL AND REMOTE	SUPPORTING PEOPLE WITH CHALLENGING BEHAVIOURS OR COMMUNICATION DIFFICULTIES	PARTICIPATION
Workshop: The long and winding road (big step) Donna Best, Paul O’Dea, Belinda Drew, Morrie O’Connor & Michelle Moss	Workshop: Taking control through digital transformation – effective systems Natalie Berry & Declan Kelly	Making it real – student education in rural allied health disability services Julie Cullenward	What do disability support organisations believe about Positive Behaviour Support (PBS)? Using policy belief systems to identify emerging alliances in the NDIS Brent Hayward	Local Inclusive Fitness for Everyone (LIFE): results from a novel pilot project Dr Carole Broxham & Dr Eli Ristevski
		CDS outreach: reflections on establishing therapy facilitator services under the NDIS in western NSW Sarah Wagstaff	The accessibility and usefulness of Positive Behaviour Support plans for non-specialised support people Chloe Jarvis	Inclusive access to South Australian sporting clubs for individuals with intellectual and physical disabilities Claire Robertson

Concurrent Session 5
COMPLEX SUPPORT	INCLUSIVE RESEARCH METHODS	RURAL AND REMOTE	SUPPORT FOR DECISION MAKING	QUALITY AND SAFE SERVICES
Restrictive practices – illuminating communities Susan Connell	People with intellectual disabilities as researchers: establishing an inclusive research team Felicity Crowther	Telepractice: a real choice for quality therapy services in rural areas Dr Kim Bulkeley	Article 12 and the NSW guardianship framework: a case study highlighting barriers for people with intellectual disability regarding legal capacity and autonomy of decision-making Jenna Macnab	What is good service quality for people with intellectual disability? Frontline day service staff’s perspectives on what it is and how it should be measured Jade McEwen
Understanding the impact of the roadmap for achieving dignity without restraint for people with disabilities Dr Raelene West	Inclusive research and diverse teams – who takes control and when?! Dr Phillippa Carnemolla, Jack Kelly, Catherine Donnelley & Aine Healy	Barriers and impediments to providing end-of-life care in rural Australia A/Professor Stuart Wark	Strategies for supporting people with intellectual disability to have choice and control over their lives? Dr William Crisp	Building safe and respectful cultures in disability services: results of a pilot project Professor Sally Robinson & Marianna Codognotto
Background evidence for the statement of ASID’s position on intellectual disability and complex support needs Professor Leanne Dowse	Our recipe for inclusive research Rachel High, Hannah Beinke, Mary Whitford, Genelle Markham & Corey Hooper	Living a good life for Aboriginal people with intellectual/ developmental disability from central Australia A/Professor Angela Dew	Developing an evidence-based practice framework to guide support for decision making Professor Christine Bigby	Sexual abuse of people with an intellectual disability – a perpetrator case study Gail Ritchie

Session	Title	Presenters	PDF File
Keynote	Helping damaged people manage their chaotic emotions	Dr Jennifer Clegg

Concurrent Session 6
PBS	RESPECTFUL SERVICES	NDIS	SELF-ADVOCACY AND RIGHTS	INCLUSION IN UNIVERSITIES
Workshop: Emotional wellbeing and PBS for caregivers and people with disabilities who display behaviours that challenge Dr Nick Gore	Workshop: Making services safer and more respectful Peta Ferguson, Professor Sally Robinson & Marianna Codognotto	Panel Discussion: NDIS – What could possibly go wrong? Panel Members: Morrie O’Connor, Jim Simpson & Delphine Stagg	Workshop: My life. My rights. How Australia is doing at protecting our human rights and what the UN have to say  Rachel Spencer, Judy Huett & Sonia Hume	Round Table: Inclusion of people with intellectual disability at university in Australia Dr Fiona Rillotta & Professor Patricia O’Brien
		N/A

Concurrent Session 7
INCLUSION	VIOLENCE AND ABUSE	BEREAVEMENT	PROVIDING INDIVIDUAL SUPPORT	ADULTS AND SERVICES
Workshop: What inclusion means to me Sarah Byrne, Rebeka Touzeau, Chris Bergin & Ben Alexander	Forum: Royal Commission on Abuse,Violence Neglect, and Exploitation of People with Disabilities	Workshop: The Adult Attachment Picture Projective System: what it tells us about bereavement and why that matters Dr Jennifer Clegg	Inclusive practice for decision making support Justine O’Neill & Jack Kelly	Living a full and meaningful life with a physical & intellectual disability Dayna Atkinson, Valeska Catalan & Sarah Black
			Evaluation of decision-making support training for disability support workers Dr Stella Koritsas	Experiences of National Disability Insurance Scheme planning from the perspective of adults with intellectual disability Professor Angus Buchanan
			N/A
			The international perspective on Easy English and Easy Read: the journey forward Cathy Basterfield	Service provider perspectives on supporting people with intellectual and developmental disability from Iraqi and Syrian refugee backgrounds A/Professor Angela Dew

Friday 8 November
Session	Title	Presenters	PDF File
Keynote	Indigenous perspectives on disability and inclusion, and implications of these for supporting people with intellectual disabilities	Scott Avery
Keynote	Self-advocacy, peer networks and accessible information provision: how they have shaped our lives	Ian Cummins, Tiffany Littler, Rebeka Touzea, Gavin Burner, Chris Bergin, Sarah Byrne & Elizabeth Crawford

Concurrent Session 8
WORKING INCLUSIVELY	SELF-ADVOCACY	APPROACHES TO INCLUSION	TECHNOLOGY AND INTERNET CULTURE	SELF-DETERMINATION
Workshop: Inclusive research methods and practices involving people with intellectual disability Scott Avery & A/Professor Angela Dew	Workshop: Speaking up for yourself – the first steps to being a self-advocate Our Voice SA members: Elizabeth Crawford & Gavin Burner with Karen Rogers & Alison Vivian	Belonging to the Disability Services Advisory Council Brad Mitchell & Emily Reaper	Caregivers’ views of the risks and benefits of Internet use by people with intellectual disability Sarah Glencross	From criminalisation to individual choice: policy responses to changing constructions of intellectual disability in Western Australia Wendy Simpson
		An artist’s interpretation of the National Standards for Disability Services The Inclusive Research Network	The use of virtual reality for capacity building through sensory experiences Gerald Farrugia	Adventures in becoming a ‘legal’ adult with severe intellectual disabilities: personal and research perspectives Michelle King
		Taking control through writing and making art Lisa Scott & Chloe Watfern		There and back again – Our South Australian Journey.  The use of skilled communication partners in the criminal justice space Jennifer Jacobs & Cheryll Rosales

Concurrent Session 9
REFLECTIONS ON THE CONFERENCE	PEOPLE WITH COMPLEX NEEDS	FAMILY AND LEADERSHIP
Workshop: Wrap up session: What can we do with all the research! Aine Healey, Sonia Hume & Gavin Burner	Round Table: The right to effective treatment for individuals with complex needs Jennifer Colechin & Chelsea Troutman	Building Family Leadership – Culture and Process – a Provider’s View Prue Gorman
		Evaluating Self-directed Support – Outcomes of a Family Leadership Model A/Professor Caroline Ellison
		My experience of self-directing my own support Michael Mooney