Online Program

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Friday 12th November 12pm AEDT & Wednesday 17th November 12pm AEDT

The conference aims to provide all sessions on-demand to registered delegates for 3 months post event, dependent on speaker consent.  

Click on the presentation titles to view the abstracts.

Program times are listed in AEDT. To convert program times to your timezone, CLICK HERE

We have colour-coded each presentation to help you select the session you would like to attend.

These colours identify what we think is the main focus of the presentation:

 Orange  = Academic Research
 Green  = Service Provider Perspectives
 Blue  = Lived Experience

Friday, 12th November 2021

1130 – 1200 Delegate Networking & Exhibition
1200 – 1315 Plenary #1
1200 – 1215 Opening Address
Acknowledgment of Country | Associate Professor John Gilroy
1215 – 1315 Keynote Address
Chair | Dr Michele Weise

Let’s talk about death, dying and intellectual disability
Professor Irene Tuffrey-Wijne



Dying with intellectual disability: An overview of end-of-life care for people with intellectual disability in Australia
Dr Andrea Grindrod  
1315 – 1330 Refreshment Break & Exhibition
1330 – 1500 Concurrent Session #1
Time Protecting Rights Supporting Decision Making Practice Countering Exploitation & Violence Rights In COVID Times Health
Chair Mr Brent Hayward Dr Bernadette Curryer Dr Bronwyn Newman A/ Prof. Angela Dew A/Prof. Stuart Wark
1330 – 1400

Two scandals: The death of Ann Marie Smith in Australia and the Whorlton Hall scandal in Britain

Dr Alan Hough

Development and preliminary evaluation of the Decision Support Questionnaire

Prof. Jacinta Douglas

A practical approach to group work with women with intellectual disabilities impacted by domestic and family violence

Mrs Hannah Sanson, Victoria Tucker

Self-Advocates building back better during COVID-19

Ms Donna Best

An evaluation of Project ECHO video learning to improve mental health support to adults with intellectual disability in NSW

Dr David Thompson

1400 – 1430

Where the rights of workers and persons living with disability intersect: Reconciling ‘competing’ legal frameworks and suggested solutions

Dr Dru Marsh

Reflections of parents about value of training and mentoring for supported decision-making practice

Prof. Christine Bigby

Pregnancy decision-making support for pregnant people with intellectual disability experiencing violence and reproductive coercion

Ms Victoria Tucker, Ms Stephanie Chen

Exploring human rights informed responses to the COVID-19 pandemic in Victorian disability services

Dr Joanne Watson

Inclusive communication – Improving health outcomes for people with Down syndrome – A discussion on the research, the development and the delivery of the health ambassador program

Ms Caitlin Woolley, Mrs Natalie Graham

1430 – 1500

Characteristics of an organisation where sexual abuse has occurred

Gail Ritchie

Make decisions real: Evaluating supported decision making resources

Brooke Canham, Lorrain Sequerah

ListenUp project: Peer workers supporting consultations with women who have intellectual disability, resulting in a podcast that discusses disability, accessibility and violence

Miss Jane Barrett, Cassandra Johnston

Reconnecting online during COVID-19 lockdown: Negotiating creativity and leadership in online music gatherings

Dr Anthea Skinner, Grace Thompson

Increasing disability support workers’ capacity to identify pain in people with intellectual disability and limited communication

Ms Tessa-May Zirnsak

1500 – 1515 Refreshment Break & Exhibition
1515 – 1615 Plenary #2
1515 – 1615 Keynote Address
Chair | Brigit Mirfin-Veitch

Indigenous intellectual disability services: An insight into a Kaupapa Māori Service in Aotearoa New Zealand
Tania Thomas

A deeper insight into indigenous intellectual disability services: Whanau (family) perspectives and the impact of COVID-19
Ani Petera

Tania Thomas and Dr Kelly Tikao will delve deeper into both the challenges and strengths of indigenous intellectual disability services in the context of the ongoing global COVID-19 pandemic.

1615 – 1630 Refreshment Break & Exhibition
1630 – 1730 Concurrent Session #2
Time Supporting Decision Making In Context of Health Quality of Staff Support Social Inclusion Looking Back & Looking at Protecting Rights Health & Wellbeing
Chair Dr Hilary Johnson Prof. Christine Bigby Mr John Grant Dr David Thompson Ms Linda Ward
1630 – 1700

Planning for a good life, right to the end

Ms Nicola Mckenzie

Psychometric evaluation of the Active Support Measure

Dr Lincoln Humphreys

Journeys of micro-entrepreneurs with intellectual disability: An inclusive research perspective

Dr Katherine Moore, Mr Alan Duffy, Mr Craig McAllister, Ms Susan Harbottle, Ms Annie Rolfe

Connecting and reconnecting with the global disability advocacy community – the opportunities created by the UN Conference of States Parties to the CRPD

Emma Phillips

Falls risk assessment and intervention for people with intellectual disability: A systematic literature review and implications for practice

Ms Tamsin Gallie

1700 – 1730

The Victorian Medical Treatment Planning and Decisions Act 2016: Experiences of advance care planning with decision making support

Dr Margo Sheahan

Development and validation of the “Observing Staff Support” Tool: An observational tool for managers and regulators auditors

Dr Tal Araten-Bergman

Evaluation of Back-to-Back Theatre film internship program

A/Prof. Angela Dew, Ms Eden Menta, Mr Bruce Gladwin

A zero-tolerance approach to build relationships and inclusion and decrease isolation

Ms Anna Simpson

1CHART – Implementing electronic paperless medication management

Ms Prudence Lennox

1730 Program Day 1 Concludes



Wednesday, 17th November 2021

1130 – 1200 Delegate Networking & Exhibition
1200 – 1315 Plenary #3
1200 – 1215 Introduction to Day Two
Acknowledgment of Country | Associate Professor John Gilroy
JIDD Annual Awards 2020 Announcement
1215 – 1315 Keynote Address
Chair | Mr Jim Simpson

Systemic neglect of the health care needs of people with intellectual disability: evidence, implications and actions
Professor Julian Trollor


Health and People with Intellectual Disability – The flow of change in policy and practice looking back, and into the future
Professor Nick Lennox


1315 – 1330 Refreshment Break & Exhibition
1330 – 1500 Concurrent Session #3
Time Inclusive Research Leading Practice Quality Empowered Self Advocates Organisational Aspects of Quality Autonomy & Decision Making
Chair Dr Brigit Mirfin-Veitch Ms Laura Hogan  Morrie O’Connor Dr Alan Hough Dr David Thompson
1330 – 1400

Co-researcher training with young people with intellectual disability: taking an inclusive approach to health services research

Ms Laurel Mimmo

Leadership of Positive Behaviour Support (PBS) in Australian disability services: A social network analysis and validation

Mr Brent Hayward

Scammers Awareness Group Project

Ian Williamson, Alan Duffy, Michael Cherry, Kelee Sheard, Felice Kirby, Paul O’Dea, Craig McAllister, Bernard Denny

Nothing about us without us – Inclusive Governance Project

Dr Bernadette Curryer, Ms Katrina Sneath, Mr Will Harding

Grappling with uncertainty – Parental strategies for supporting decision making

Prof. Christine Bigby

1400 – 1430

Nothing without us – co-design in a time of change

Mr Ben Alexander, Ms Monica Cusack

Frontline practice leadership in supported accommodation services: reviewing the evidence

Prof. Christine Bigby

“People Coming Together for Housing”: A Workshop by the Independent Youth Housing Group (IYHG)

Ms Jenifur Charne

Administrative compliance or personal outcomes? Exploring staff perspectives about service quality in day services for people with intellectual disabilities

Mrs Jade McEwen

Paternalism to Empowerment: All in the eye of the beholder?

Prof Terry Carney

1430 – 1500

‘Own stories’: Looking closely at the narrative environment co-created with people with intellectual disability in transition to adulthood telling their stories about sexuality and relationships

Ms Monica Wellington, A/Prof. Patsie Frawley

The impact of the BILD PBS coaching programme on changing workplace practice

Prof. Edwin Jones

Human rights and disaster planning

Ms Michelle Moss, Donna Best

Supporting justice – the role of disability services in addressing the criminalisation of intellectual disability

Mr Jim Simpson, Mr Justen Thomas

Building on support staff’s warm feelings to enhance their support for self-determination

Ms Charity Sims-Jenkins

1500 – 1515 Refreshment Break & Exhibition
1515 – 1615 Plenary #4
1515 – 1615 Keynote Address
Chair | Dr Hilary Johnson
Easy language, Easy Read: what do adapted written English formats achieve for people with intellectual disabilities?
Dr Deborah Chinn
Easy Read at CID
Jemima Macdonald & Pamela Darling
1615 – 1630 Refreshment Break & Exhibition
1630 – 1730 Concurrent Session #4
Time Support For Adults Children & Families Families Children Frontline Practice Leadership Resources
Chair A/Prof. Mary-Ann O’Donovan Ms Samantha Frain Dr Joanne Watson Dr Allyson Thompson Ms Laura Hogan
1630 – 1700

A case study of the impact of administrative frameworks on a group of intellectual disabled children admitted to an Australian mental hospital in 1952

Dr Gina Andrews Zucker

The Bumpy Road – our child protection journey. Hear from parents with experience

Rachel Tozer, Lisa Bartulis 

Family engagement with adults with developmental disabilities in supported accommodation

Dr Carmit Noa Shpigelman, Dr Tal Araten-Bergman

Adapting Cognitive Behaviour Therapy for Children with intellectual disabilities

Dr Anastasia Hronis

 One (1) hour session

An evidence based frontline practice leadership training resource

Dr Lincoln Humphreys

1700 – 1730

Recasting ‘harm’ in support: Misrecognition between people with intellectual disability and paid workers

Prof. Sally Robinson

Child protection involvement of children of mothers with intellectual disability

A/Prof. Helen Leonard

Iraqi and Syrian refugee family member perspectives on understandings of disability

A/Prof. Angela Dew

Today’s challenge is to ensure the opportunity to learn and to build capability for children with learning disability and Down syndrome

Dr Maree Kirk

1730 – 1745 Plenary #5
Closing Address & Handover to 2022
1745 ASID Online Conference Concludes
On-Demand Presentations


Presentation Title Presenter Slides
1. A scoping review of interventions aimed at increasing physical activity for people with intellectual disabilities. Can social marketing play a role? Ms Angela Makris
2. Admissions, prevalence and quality and safety outcomes for children with intellectual disability admitted to a tertiary paediatric healthcare organisation: a retrospective chart review Ms Laurel Mimmo  
3. After school jobs for young people with intellectual disability Ms Michelle Wakeford  
4. Designing an online community with parents of disabled children Ms Elizabeth Goodwin  
5. Emergency medical care of people with intellectual and developmental disabilities. A systematic review Ms Yvonne Wechuli
Dr. Jana York
Prof. Dr. Ute Karbach
6. Gainful employment of two young adults with mild intellectual disability: A narrative study Ms Wan Ting Tay
7. Growing together through gardening – Supported Independent Living (SIL) site gardens as spaces for wellbeing and connection for people with cognitive disability Dr Kate Neale  
8. Inclusive approaches to customer satisfaction surveys for disability services Ms Caroline Cummins
Ellen Staas
9. Integrating immersive experiential learning with Positive Behaviour Support Training Mr Mark Di Marco  
10. Measuring child outcomes in disability services: A survey for carers Dr Caroline Hart  
11. Milkshakes and cups of tea: Talking about consent with people with intellectual disability and complex communication needs Dr. Amie O’Shea
Megan Walsh
12. Play is not just for children! Appropriate utilisation of play- and game-based learning for adults with an intellectual disability Dr Anna Moffat  
13. The Neighbourhood Circles Project: Mapping neighbourhood inclusion and access Mrs Sarah Burrage Faulkner  
14. Upskilling people with disability to inspire change in creating future individualised career options Mrs Helen Neale
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