Keynote Speakers

Please see below keynote presenters confirmed to present at the conference.  Please check back to this page regularly as additional speakers will be added as they are confirmed.

Click on the presentation titles to read the abstract.

Professor Irene Tuffrey-Wijne

Irene Tuffrey-Wijne (RN, PhD) is Professor of Intellectual Disability & Palliative Care at Kingston University & St George’s University of London. She has close collaborative links with Maastricht University (Netherlands). She has extensive clinical experience in both intellectual disability and palliative care services.

Since 2001, Irene has led a programme of research focusing on intellectual disability, cancer and palliative care. She has published widely and presented her work in the UK and across the world, and is recognised as the leading international expert in the area of palliative care for people with intellectual disabilities. Inclusion of people with intellectual disabilities as study participants and as salaried co-researchers is a key part of her work.

Irene is a founding trustee of the UK based (but international) Palliative Care of People with Learning Disabilities Network, and chair of the Reference Group for Intellectual Disabilities of the European Association of Palliative Care.

Presentation Title: Let’s talk about death, dying and intellectual disability

Dr Andrea Grindrod

Andrea is a Research Fellow and the Projects Manager at La Trobe University’s Public Health Palliative Care Unit. She leads a program of research and practice on public health approaches to palliative and end-of-life care and is a member of the Public Health Palliative Care International Council. Her focus combines research, policy and practice development to support participation in sectors not routinely involved in contributing to palliative and end-of-life care.

Andrea is the developer of the Disability Healthy End of Life Program (HELP), an organisational model developed in partnership with disability services in Australia. HELP, a health promotion approach dying, death and bereavement, is featured as the Australian case study in the World Health Organization’s Global Atlas of Palliative Care (2020).

Presentation Title: Dying with intellectual disability: An overview of end-of-life care for people with intellectual disability in Australia

Tania Thomas

Tania hails from the far North and is of Ngati Kahu, Scots and Irish decent. She is a grandmother of four mokopuna and mother to three daughters. Tania grew up in South Auckland.

She is the Manawhakahaere/CEO of Te Roopu Taurima the largest kaupapa Māori disability support service in Aotearoa/New Zealand. Tania has worked in the disability sector most of her working life and started as an Orientation and Mobility Instructor working in the field of blind and low vision.

Prior to joining Te Roopu Taurima she was the Director of the Whānau and Family Knowledge Centre at the Families Commission. Tania has also held the role of Deputy Health and Disability Commissioner responsible for portfolios in disability, Māori health, prisoner health and allied health professionals.

Tania holds governance roles within her Iwi, is on the Board of the National Advocacy Trust, the NZ Disability Support Network and is an Area Governor within Rotary. She has an MBA from the University of Auckland.

Professor Julian Trollor

Julian is a neuropsychiatrist and holds the inaugural Chair of Intellectual Disability Mental Health at the University of New South Wales (UNSW). He also heads the Department of Developmental Disability Neuropsychiatry (3DN) within the School of Psychiatry at UNSW.

Julian and his 3DN team work to improve health policy, practice and supports for people with an intellectual or developmental disability. The team is involved in teaching, training, health promotion, and the development of educational resources.

3DN conducts research with high translational benefit to the disability and health sectors and provides consultancy of the highest standard, including clinical consultations, advocacy and contributions to policy and legislative reviews.

Presentation Title: Systemic neglect of the health care needs of people with intellectual disability: evidence, implications and actions

Professor Nick Lennox

Professor Nicholas Lennox was the Director of the Queensland Centre for Intellectual & Developmental Disability (QCIDD), at the University of Queensland.

He has provided physical and mental healthcare to adults with developmental disability over a 28-year period in Melbourne and Brisbane. He has also lead innovations in education and applied research, which has changed healthcare delivery and education. Most notably, he lead three complex pragmatic randomised controlled trials of the Comprehensive Health Assessment Program (CHAP).

He feels passionately about improving the health and health care of people with developmental disability, especially when this is driven by empowering adults with a disability, their families and supporters, and healthcare providers. Since ceasing clinical practice in 2018, he has continued to work in the areas of advocacy, education and research. In April 2020, he asked to join the Federal Health Department as the Senior Medical Advisor on Health & Disability.

Dr Deborah Chinn

Deborah worked for many years as a clinical psychologist in publicly funded specialist health services for people with intellectual disabilities before taking up an academic role at King’s College London. Deborah continues to draw on the insights she has gained in practice about both the systemic and the everyday exclusions experienced by people with intellectual disabilities and also their creativity and resilience. Deborah has an ongoing interest in using Conversation Analysis to examine how people with intellectual disabilities experience health and social care interactions. She is also involved in a three year project exploring the quality of staffed group homes for people with intellectual disabilities using participatory photography with residents.