Inclusive practice for decision making support

Justine O’Neill1, Jack Kelly1,2

1NSW CID, Sydney, Australia, 2University of Technology Sydney, Sydney, Australia

Background:
For the last decade Australia has been active in trials, pilots and research around supported decision making, which has led to the development of supported decision making principles, resources, policies and opportunities. This work has generally not been initiated by organisations led by people with intellectual disability and has often had a legal focus.

CID believes inclusive practice is an essential foundation for the success of support for decision making practices. Decision making support cannot happen without an inclusive philosophy and inclusive practice does not require a change to the law.

Method:
Inclusive practice is the way CID ensures all staff and members understand our aims, projects and communications and can participate with greater equity. CID uses inclusive practice in our governance structures, co-design and delivery of projects.

Support for decision making happens when a person leads decision making about their lives, and when an organisation facilitates their inclusion and leadership in projects.

Results:
We will talk about

  • CID’s inclusive practice
  • how we manage risk
  • how to use inclusive practice to develop information about decision making support led by the experiences of people with intellectual disability

Implications:
This work helps people with intellectual disability demonstrate to policy makers, supporters and others the information they need to make decisions and how inclusive practice principles enable decision making. The work helps people with intellectual disability be leaders in decision making, rather than just recipients of support.


Biography:

Justine leads a team that advocates for the rights of people with intellectual disability. Justine has over 20 years’ experience in service delivery and management. Before joining CID, she was the acting Public Guardian for NSW and active in the movement towards support for decision making for people with cognitive disability. Justine enjoys working with CID’s members to build an inclusive community.

Jack Kelly has worked in the disability research and advocacy sector since 2015, having worked with the Centre for Disability Studies (CDS) inclusive research network as a Research and Administration assistant. Jack currently holds positions at the Council for Intellectual Disability (CID) as a project worker and at the University of Technology Sydney (UTS) as a research associate. Jack is passionate about advocating for the rights of people with intellectual disability, with a strong focus on good health care due to his own experience within the health care system.